Caregiving and family responsibilities

Why are carers of young adults particularly burdened?

Carers of young adults are faced with multiple burdens because they are often in a phase of life in which they have to fulfil a variety of responsibilities within their family. They might raise their children and have to care for their parents at the same time. Mostly people are in the middle of their working life and must combine family responsibilities with their employment too. When the need for care arises, they may now have to take on the tasks of the carer and, for example, must earn a higher income or take care of children on their own. In addition, there is the psychological burden: the relationship with the carer changes due to transformations in the (family) role and social contacts easily break due to the time demands. 
Illustration of a woman kneeling, struggling to carry large geometric shapes. Her expression is determined, conveying the burden of stress or responsibility.

In which areas of life can you find relief?

As a carer, it is important for you to create space to reduce your stress levels. Here you can find out how to:

    • take time for yourself,
    • find a place to talk,
    • find support for your relationship,
    • tackle financial worries and
    • reduce physical exertion.

How to combine caregiving with family responsibilities?

Sometimes it takes perseverance and good information to break out of the daily routine of caring. Find out what Paul experienced, caring for his wife with multiple sclerosis for years. See what Kerstin felt when the character of her husband suddenly changed after his stroke. Afterwards you will have the chance to discover how to cope with similar situations.     


[Kerstin]

[Paul]

What can you do find relief?

Time for yourself is often neglected. Try to allow yourself a time out even in stressful phases. If you find time for yourself as a carer, you don’t need to feel ashamed. Take your time and think about what is particularly valuable to you personally. You can be choosy. Don’t use free time to fulfil the expectations of others! Ask your relatives or neighbours to help at home for short periods of time to make free time possible. Choose times that require less care. In some places, volunteers offer to provide care at home. Sometimes you can also make use of professional care services.

If you miss the opportunity to talk to someone, you could go to a self-help group. If you feel under persistent psychological strain, do not hesitate to look for psychological support.

In the case that your relationship with the person you are caring for is suffering as a result of the changed situation, this may be a good reason to contact a couples or family counselling service. They will help you to communicate as equals and find your way into the new family life together.

Being in need of care, your family usually has to cope with less income and high expenses at the same time. Here you will find useful tips on where you can apply for financial assistance. If you find yourself in a very acute financial emergency, debt counselling can also provide support. This is ordinarily provided for free by charity-organisations and local communities. You can find some links below.

Caring for a person usually means full physical effort. To reduce your efforts, it makes sense to think about aids and modifications (e.g. lifts). You can find out more here item. The local pages on building up your personal resilience might help you as well.

Two women sitting across a table in discussion, expressing concern. Speech bubbles indicating conversation.

Good Practices

Italy

Relief voucher

Some Italian regions, such as Lombardy, Emilia Romagna and Tuscany, offer vouchers to families to access respite services, such as home care or the support of a caregiver. These vouchers help cover the cost of home care, easing the burden of long-term care.

Netherlands

Hello 24/7

Hello 24/7 is an app offering a groupchat and -agenda, enabling improved coordination between family members, friends, and/or acquitainces who take care of someone with care needs.

Germany

Respite care and daily care services

There are special ambulant care services you can use if you do home care and regularly or exceptionally need time for yourself: Someone can temporarily replace you at home or you can use short-term care in a facility. The services are largly paid by the social care insurance if the person in need for care is entitled to it. You can find more general information about on the title link. Addicional info here.

List of Materials

Italy

Caregiverfamiliare.it

A platform that brings together resources, information and advice for caregivers and families of people with disabilities. It provides tools for resource management, access to services, and advice on how to cope with daily difficulties.

Netherlands

Family conversation training

MantelzorgNL pro offers tools, trainings, and hand-outs for professional caregivers to help them start a conversation with informal caregivers when family and care responsibilities are not well aligned.

Germany

Examples of debt counselling

Example of dept counselling offered by non-profit charity-organisations. link 2

Hints for a serious dept counselling

Summary of the independent German Verbraucherzentrale (consumer advice centre) on how to find a serious dept counselling.

Family and couples counselling

Overview of family and couples counselling.

Portugal
Lithuania

Relevant information for relatives caring for a family member with a disability

Family members can find concentrated and clearly presented information about the social services and benefits available for them.

Connected topics

Scroll to Top